My nephew and niece, Bryce and Annalise, have been "diagnosed" with unspecified leukodystrophy. They are basically losing their muscle control, after completely normal early development. Their mom and a friend have set up a blog to keep people updated on the situation and give people a chance to help with the next adventure: genetic sequencing.
Check out the blog and donate if you're able. These are awesome, sweet little kids!!!
www.bryceannalisesjourney.blogspot.com
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